Life in my Shoes

Life in my Shoes

Monday, July 25, 2011

What then?
{Author unknown}

When the plants of our mighty cities
Have turned out their last finished work;
When our merchants have sold their last yardage
And have dismissed the last tired clerk,
When our banks have raked in their last dollar
And paid out their last dividend;
When the judge of the earth says,
"Closed for the night."
And asks for a balance......what then?

When the choir has sung its last anthem,
And the preacher has made his last prayer,
When the people have heard their last sermon
And the sound has died out on the air;
When the Bible lies closed on the altar,
And the pews are all empty of men,
And each one stands facing his record......
And the Great Book is opened.......what then?

When the actors have played their last drama,
And the mimic has made his last pun;
When the film has flashed its last pictures,
And the scoreboard displayed its last run,
When the crowds seeking pleasure have vanished
And gone out in the darkness again.....
When the Trumpet of the Ages has sounded,
And we stand up before Him......what then?

When the bugle's call sinks into silence,
And the long-marching columns stand still;
When the captain has given his last orders,
And they've captured the last fort and hill,
And the flag has been hauled in from the masthead,
And the wounded afield have checked in,
And a world that rejected its Savior,
Is asked or a reason.......what then?

Thursday, July 21, 2011

Disappointed

During our visit with the endocrinologist on Monday, I gave him the "Medical Necessity" form that had been emailed to me that I needed to get signed and faxed by the doctor.
Once this last form was sent in, the Dexcom people would be able to verify our benefits with our insurance and let us know how much it would cost us out of pocket.
Did I mention before that our insurance changed on the 1st of June?
And the coverage it much, much less than what we had the first  months of this year?

The cost of Ashlyn's medications/supplies are now quadruple the cost they had been for us.
Grant's medication doubled in cost.
My allergy meds just came out in generic form, so it actually got cheaper but only because it's available generically.

I wasn't hopeful that the coverage would be that good for the Dexcom.
I was right......sort of.
Along with the new insurance comes a brand new, unmet deductible of $2000.
We would have to pay an upfront cost of $1200 for the device and 1 months supply of the sensors.
(One sensor lasts for 7 days before you have to change it out)
The remaining deductible is $800.
We would have to pay something like $280 for every month's sensors until we reach that $800 mark.
After that, we will have to pay $75 a month for the sensor's.

Needless to say, we don't have that money.
Weren't prepared for that when we made up our budget for the year.
So, we won't be able to get this extremely helpful {necessary if you ask me!!}technology this year.
Maybe now that we have numbers, we can use some income tax return money next year and juggle things around to make that work in the future.

For now, I'm disappointed.
And fighting the urge to be resentful that we just don't have the resources {anymore} to help our daughter manage this disease WELL!!
It's enormously frustrating to know what we NEED, but have no way of providing it easily.
I didn't realize that to have the tools we need to make things better takes independent wealth.
It's all good that it's out there and available.....it's just beyond our fingertips though!!

Trying not to complain.
I know.
We ARE grateful that things are not worse.
We ARE grateful that my husband has not one, but two jobs.
We ARE grateful that we even have private insurance.
We ARE grateful that we own our home and are not in danger of foreclosure...like so many right now.
We ARE grateful that we have two vehicles that are paid for and run pretty well for us.
We ARE grateful that our children are healthy {for the most part}, and not permanently disabled.
We ARE grateful that all the appliances work in our home.
We ARE grateful that I can go to the grocery store this morning and fill up our little pantry for the week.

Trying not to wish for what we DON'T have.

Trying to discipline my mind to focus on what the Lord has given today.

Tuesday, July 19, 2011

Feeling frustrated

"I cried unto God with my voice,
even unto God with my voice;
and he gave ear unto me.
In the day of my trouble I sought the Lord...
I complained,
and my spirit was overwhelmed.....


It can be very comforting to know that the frustrations you feel are not unique to you.
It's days like these that I find strength and a different perspective on my daily challenges in reading the Psalms.
I also find myself remembering those stories of folks who are suffering through things WAAAAAY beyond what I experience every day.

Yesterday was one of those days......
It was Ashlyn's quarterly visit with the endocrinologist.
I suppose some people find doctor check-ups annoying and inconvenient, but I appreciate the regular life-line it gives us for advice and information.
I also like to hear that she's growing and we're managing things just fine in the midst of everything else.
Yesterday was not one of those visits.
I went hoping to find some solid answers and good resolutions to why Ashlyn's blood sugar numbers have been so difficult to control lately.
Literally, it feels like we're playing a game of cat and mouse.
Super high blood sugar number.
Medicate with lots of insulin.
Check later......better, but still high.
Now she's low.
Oops....back high again.
More insulin.
Adjust Lantus.
High when she wakes up.
High at lunch.
Low in the afternoon.
Blah...blah....blah.

I mentioned to the doctor yesterday, that it was like we're chasing highs all day.
His basic response was..."Welcome to my world."
We talked about all the usual stuff......puberty {which he said she hasn't hit yet}, diet {which I've beat myself over the head trying to figure out for all 8 of us within an extremely narrow food budget these days},  using the insulin pen correctly, staying on a schedule, the lack luster cons of a continuous glucose monitoring system {i.e. the Dexcom 7}.
I told him about the incident at camp this week.

For all intents and purposes, he looked me square in the face and told me I was negligent for letting her go to a camp where the camp nurse is really only prepared to be putting on band-aids all day.
"Unless it's a camp that's certified in handing Type 1 Diabetes, these nurses aren't trained to know when to scale back on their doses, and to do extra checks during the night if they have been low, and to monitor their food/carb intake, and how to deal with emergencies, and where to give the glucagon shots if necessary."

He didn't really say it all that horribly, but believe me, that's the impact I felt as I listened to him.
He really brought it home for me that what happened could have gone horribly wrong and ended up much worse than it did.

He finally sent in a diabetes educator to us to communicate that we would be continuing through the process of pursuing the Dexcom CGM {continuous glucose monitoring system}.
Then we sat with the nutritionist to help us figure out how many carbs Ashlyn should be eating at each meal.
Because we're not ready to switch our entire lives over to the insulin pump and get her all wired up and basically shackled to this little device, we're going back to the old-school.
Using ratios while sticking with a set number of carbs per meal and limited carbs for in between snacks.

"......I am so troubled that I cannot speak...."

Yet another wake-up call to the reality of what this disease is and how confining it can be.
To look at her you would never know.
That's what is so frustrating!!
She looks and acts like every other beautiful, healthy, vivacious, fun-loving 11 year old.....
but there's a monster lurking inside her.
One that can cause the cold fingers of anxiety to crawl up my spine and take a strangle hold of my throat.
Faced it yet again yesterday.

"Hath God forgotten to be gracious?
hath he in anger shut up his tender mercies?
Selah."

But I'm forced to look around me and remember that so many have so much more to struggle with.
As we walk down the hallway to the elevator, we pass a little boy in a wheelchair.  
He is sitting straight up with a halo device screwed into his scalp and held suspended by wires to a frame above his head.
I can't imagine the anxiety and stress his parents feel every day.
He was sitting at a video game in the waiting room of the urology clinic.
When we exit the elevator where we descended from the 4th floor, more children in wheelchairs.
Babies.
A young man who had obviously had some kind of head injury wearing a helmet, laying his head on the shoulder of his mother {I'm assuming}.

"And I said, This is my infirmity:
BUT......
I will remember the years of the right hand of the most High.

I will remember the works of the Lord.
surely I will remember thy wonders of old.
I will meditate also of all thy work,
and talk of thy doings.

Thy way, O God, is in the sanctuary:
who is so great a God as our God?"
Psalm 77

Going to be taking some time today to just write down God's gifst to me recently.
I need to refocus not on what I DON'T have, but all that I do have.
And all the ways that God reveals Himself to me and shows me that He is right here....with me....through it all.

#122.  God's protection of Ashlyn while at camp
123. All funds raised for 3 children to attend camp!!
124.  Funny camp memories
125.  Access to glorious pool on sweltering summer afternoons
126.  Friends to swim with us
127.  Yet more VBS fun
128.  Cool fans on sultry, hot July evenings
130.  Early morning walks and ability to listen to scriptures at the same time


Monday, July 18, 2011

Summer camp and the diabetic child

Last week was a a busy week for us.
Our regular routines were put on the back burner while we tried to do what we could to comfort our dear friend and her family after the tragic and sudden loss of their son.
In the meantime, Grant and Ashlyn were at summer camp with a group of children from our church.
This was Grant's 2nd year to go to camp, and Ashlyn's 4th.
Old hat for us.
No big deal.
Right?
Well, when you live with Type 1 Diabetes.....it really IS a big deal.
Since she was diagnosed with diabetes just over 2 years ago, her daddy has been able to take the week off of work and go along as an adult "sponsor."
He would drive one of the church van's and help get all the kids settled in,
and just be around if anything happened with one of the kids.
It was very comforting for me because I knew he knew that this is not a condition that can be ignored
or even "let go" for the week.
If there were any questions, or if she got sick or if her blood sugars dropped low or went high....he was there.

But this year.....several months ago my husband announced to me that he had the opportunity to take a course for his job that would expand some of his skills.
He was excited about it.
When?
Out of the 52 weeks in the year, it fell on the exact same week as summer camp for Ashlyn.
Getting her packed for camp is a little bit more complicated than getting her non-diabetic brother ready.
I started the week before pulling all their outfits and labeling every sock and toothbrush and making lists of the items we needed to purchase for them.

When packing doubles of all her insulin supplies {I always pack doubles in case something gets lost or broken!},  I realized that she only had two humalog cartridges left as well as only 1 thyroid pill left.
That meant calling the pharmacy to get these prescriptions filled.
When I called, they claimed they didn't have any prescriptions for her.
So I had to make another phone call to the diabetic educator who told me 2 weeks before that she would call those in just in case I didn't get everything together for the mail order service in time {which I did not!}.
She was out of the office until next week, so I had to wait for someone else to call me back.
After I spoke with the 2nd diabetic educator, she told me she would call everything back in for me.
I called the pharmacy back and found out that the first diabetic educator had indeed phoned in the prescriptions 2 weeks ago, but the incompetent person I spoke to on the phone hadn't noticed the reason for the prescriptions being "cancelled" was because they were holding them until I called in for them!!
Then,  I was told they didn't usually stock insulin cartridges and that I could pick them up the following day.

EXACTLY why I have to start this ridiculous circus of a process DAYS in advance!!

In the meantime, I also called and spoke with the camp nurse just to refresh her memory about my daughter and the previous conversations I've had with her about my daughter coming without a parent.
She was extremely conscientious and knowledgeable, and my husband had only the highest praise for her since she has been the nurse at the camp for several years.
She agreed that it would help her to have a detailed instruction sheet with all of Ashlyn's current insulin-to-carb ratios, correction scales, and medication routines.
I emailed this to her and she emailed the menu and daily schedule they would follow.

I prayed with them as we dropped them off on Monday morning, and they waved a happy good-bye!

My first phone call from the camp came that night.
It was really just an update and to let us know that Ashlyn was doing fine and that she had a low during evening chapel which she recognized and they easily corrected.

We went on with the our week, and by Wednesday evening were pretty exhausted from the emotion of the funeral {see previous blog post for details!}

5:30 am Thursday morning
My cell phone rings.
It's the camp nurse.
They aren't sure why, but Ashlyn had fallen out of the top bunk in her cabin and seemed to land on her face on the cement floor.
She was unresponsive when her counselor reached her, so she assumed she needed to use the {emergency} cake gel in her diabetic bag to bring her blood sugar back up.
Obviously, she also tried to check her blood sugar but mistakenly put the test strip in the meter upside down,
so it wouldn't operate properly for her and gave her an error message.
She had called the nurse, and by the time she and the other nurse got to the cabin, Ashlyn was responding but was very agitated, disoriented, complaining of her head hurting, and crying loudly.
She had a swollen lip, the nurse said, and some blood in her mouth and a scrape by her nose.
She let me try to talk to her, but it sounded to me like she wasn't even fully awake.
She kept crying, "I want my Mom...."
The nurse told me that when they got to her, they tried to check her blood sugar but that the meter wouldn't work for them {referring back to the upside down test strip}, so she had to run back to her cabin for the extra one I had packed {SCORE one for Mom!!!}.
When they finally did get a reading, her blood sugar was 115.
This led us to believe that her blood sugar had gotten low since this was some time after the counselor had given her the cake gel.
Of course, by now the entire cabin full of girls was awake.
We mutually decided that they would monitor her and if she started throwing up {which she was saying she was going to do}, they would have to take her to the ER to get checked out.
I hung up the phone.

My husband and I laid in the bed staring at the ceiling.
We knew what they were dealing with.
We wished we were there.
At the beginning of this year, when we all got so sick, Ashlyn woke up a couple times walking through the house in what seemed like a panic.
She was crying uncontrollably and even when we got her to sit in the bathroom, it took her awhile to really wake up.
This is what she was doing for them.
I knew she wasn't sick, but figured she was just exhausted, had not gotten enough sleep, maybe subconsciously realized she was low, and when she tried to get up, fell out of bed knocking herself out.

About 45 minutes later, the nurse calls again.
She had started throwing up, and were going to take her to the ER.
They were trying to get her to check her ketones, but she was still groggy and had forgotten to do that.
I told them I trusted them, and had to let it go at that.

Several minutes later, another call.
It was a paramedic.
He said they were called to check her out, and that she looked fine except for the bruising on her lip.
Her head and stomach weren't hurting her as much and she was more coherent by then.
It was up to us if we wanted them to transport her to the ER.
We all mutually decided to to just keep her at the camp and let her rest that day.
The nurse told me then that some of the campers with Ashlyn had noticed that she was "flopping around" before she fell off the bunk, and the nurse said it sounded to her like she had been "convulsing."
I'm not sure it was that serious, since we here know she's a "mover and a shaker" anyway when she's in bed.
NO ONE likes to share a bed with Ashlyn!!

Anyway, as the morning went on, she threw up the 7-up I suggested they give her, but slept till lunch.
She was up by lunch, her blood sugar was 60,
 ate some food,
and was in the pool with her friends by 2:00pm.

I don't know that we would have done ONE thing differently if we had been there.
These wonderful nurses were on top of EVERYTHING, and had written down every number.
They were second-guessing themselves and regretting they hadn't given her a snack at bedtime when her blood sugar was 107, but then I don't think I would have either.

This is exactly why I want the Dexcom!!
It would've told them if she was heading up or down or if her blood sugar was stable.
It could have given them a reading when the counselor couldn't get the meter to work.

We are going to the endocrinologist for our quarterly review this morning.
I plan to fill him in on all these little details, and hopefully he will agree that this is something that we NEED!
Then we can get the paperwork going to see how much our insurance will cover on this puppy!!

Thankfully, she was fine the rest of that day and night and got home safely to us Friday afternoon.
I've already told Tommy that either he or I WILL be going to camp next year!
Oh, and Friday evening I got another call from the nurse.
They had forgotten to send home her Glucagon kit with her.
SCORE two for Mom!!!
We always have an extra on hand, so we're good until they can send it back to us!!

Saturday, July 16, 2011

A time to die....a time to mourn

This time last week {Saturday morning} I was busy packing my children's things
for an awesome week of summer church camp.
The plan was to send off these two older children on Monday
and spend the remaining week just relaxing, 
enjoying the casual pace of summertime,
slathering a little more attention on the youngest members of our family.
I was also hoping to spend some leisurely time shopping with my oldest daughter
who has recently started bulging out of every piece of clothing she owns,
and is in desperate need of clothes that fit her properly 
so she would be prepared for her upcoming week at summer camp which is the following week!

"To every thing there is a season,
and a time to every purpose under the heaven:"

Late Saturday evening, after I had crawled into bed, exhausted...
from the laundry and the labeling and the running around for medication supplies.....
my oldest daughter came into our bedroom asking if she could call her friend.
Initially, I was annoyed that she would ask to call a friend....at 11 O'CLOCK at night.....
who she was going to see early the next morning at church.
She then told me that her friend had posted on facebook to pray for her brother.
THAT did not seem like a legitimate reason for a recreational phone call.
But her friend did call and told her that her brother {26 years old} had fallen 
out of a car
and was barely breathing.

"....a time to be born..."

It was such a random, out-of-the-blue statement.
It didn't register with me.
But as I lay in my bed,
I felt the Lord whisper to me,
"You better check this out with {the young man's mom}."
That was it....just a quiet nudging.....the fear in a Mama's heart.
"What if......."

So I texted her.
"Is he okay?"

She called me within moments.
Terror.
They had moved her into "a family room" at the hospital and she didn't know why.
Her other son, who had been with him, was still with the police.
We cried out to our Heavenly Father together there on the phone.
To save his life.
To bring "the peace that passeth all understanding."
To help her sense His presence right there....at that moment.
I asked her to call me, no matter the time, when she heard anything.

I hung up the phone....fear strangling.

My sweet friend is just 3 years older than me.
She has two older boys who she has adored and loved and prayed for.
She has prayed the Lord would bring them back to Him.
They have chosen to live their lives tasting everything this world has to offer,
racing through life trying to find happiness and joy in all the wrong places.
Never one time has she rejected them......always talking with great love for them.
She couldn't allow them to live at home because of their two younger sisters,
both the ages of and friends with my two oldest daughters.
She couldn't allow the alcohol and the drugs in her home.

And the boys knew that.
They loved their sisters, and their mom.

"....a time to die.."

She called me back, around midnight or so,
and choked back that he was gone.
He and his brother were with a group of friends, including his fiancee'.
Alcohol.
Sitting in the back of a pick-up.
Arguing.
Fooling around.
65 miles a hour.
Lost his balance.
Fell out on the highway.

A breath away from eternity.

"....a time to weep.."

I frantically prayed with her again as I watched her walk straight into the darkest, deepest valley
I have had nightmares about and fear I never have to face.

Our family prayed together in the wee hours of Sunday morning.
We brainstormed about what we should be doing, what we could do to help at that moment.

"But I trusted in thee, O LORD:
I said, Thou art my God.
My times are in thy hand:"
Psalm 31:14, 15

I wanted to go to her.

My oldest daughter and I did go, to her home,
early Sunday morning.

"......a time to mourn.."

We cried with their family.
We listened to the stories about her firstborn baby boy.
We sat with her as the tears flowed as she breathed in the scent of him off his clothes.

We arranged for our littlest ones to play with friends while we attended his viewing on Tuesday evening. 
We quietly slipped in to his funeral, Wednesday afternoon,
 and listened to a mother's cry as she said good-bye
to a child who was gone before she could hug him.
We hugged his sisters, his grandparents, the brother who watched him fall.
We heard an uncle sing a soulful tune through tears.

"....though I walk through the valley of the shadow of death....
I will fear no evil,
for thou art with me."
Psalm 23

We witnessed the grace of God this week.
His mercy in preventing this young man from a lengthy suffering after the accident.
The grace of a loving family surrounding those who are hurting.
His presence felt so clearly in the darkest places.

"My presence shall go with thee;
and I will give thee rest."
Exodus 33:14 











Saturday, July 9, 2011

Saturdays are for: Garage Sales!!




This summer, as part of our "summer camp fundraising" projects,
we held a garage sale.
I have a love/hate relationship with garage sales.
In my former life {the one with less children},
I loved getting up early and hitting all the community wide garage sales,
and coming home with spectacular deals.
The year I was pregnant with my first baby, 
I found literally my entire maternity wardrobe at one garage sale!!
It was a thing of beauty.

But times and seasons have changed for me.
I live in an area now where garage sales are not really an art form.
It's very, very hot in the summer now, so spring and fall are the preferred garage sale seasons.
But most importantly, it's extremely difficult to take 6 highly social young children
out to drive around hunting for garage sales.
They don't want to sit in the car while you do your walk through,
they want money to buy something {anything} at every sale,
and they grumble and feel let down if they come home empty-handed.
It's a nightmare.
So, I never get out to garage sales anymore.

BUT, I thought that actually HAVING a garage sale would be more fun and practical.
Until I realized that in my tiny house, all your items have to sit stacked in the living areas,
hence, the children start going through everything and walking off with stuff,
and it becomes a whole new policing and discipline issue.
Then, you have them making a mess in the house,
while you're outside selling things.
It's just not pretty.

This year, though, my mother-in-law offered to let us use her garage
for our garage sale.
She lives in an area that I fondly like to refer to as "Little Mexico."
In that part of town, a garage sale is better than Wal-Mart,
and you should expect to sell out of everything by noon!!
I was again plagued with the issue of how to manage 6 children and early hours of the morning,
but we resolved that by letting the two older girls spend the night with grandma
so as to help her get everything set up and
 going at 8 am.
Perfect.

The morning of the garage sale,
I have the four youngest with me,
and I have only a couple items on my list to gather before we need to leave the house
and head over to the garage sale.
The little ones get up fine, and are dressed and cooperative,
and I'm 5 minutes from loading the van and thanking the Lord for a peaceful,
seamless morning.
But then.....
"Mom!!  Aryn just put a stone in her nose, and we can't get it out!!"
At first, I brushed that off because it seemed so ridiculous and out-of-place at that moment.
Then, when I really took a look, I realized.....
she has a stone WAY up in her nose.
Yes, the tiny pieces of gold painted gravel that my son brought home from VBS the day before
as reminders that God's Word is full of nuggets of truth...
have now randomly ended up in my 3 year old's sinuses!!
Let me just say this:
at that moment I overreacted.
Yes, there it is.
I howled!!
Everything was going along just fine,
we were actually going to be on time,
and now I'm staring at a gold nugget that glistened back at me every time the light of the flashight hit it.
I tried everything to get it out....
we blew and blew and blew.
Nothing.
She sneezed over and over and over.
Nothing.
I tried grabbing it with tweezers,
but that nugget was wedged in so tight that I only managed to push it up farther.
So I hurriedly called our pediatricians office and snarled out my predicament.
The gracious nurse encouraged us not to do
 anything else 
because if she aspirated it into her lungs 
we would  have a much bigger problem on our hands!
She told me that doctor had not come into the office yet,
but to bring her in so when he did arrive, 
he could assess the situation and decide if it was something he could address....
or if we would have 
TO GO TO THE ER!!!
{more howling at this point}
So I threw these four children into the van
and sped off to the doctor's office.
It was a pretty quiet, 5 minute ride.
And what happened next was straight out of a comedy routine.
I pulled into the parking lot of the office,
and as I put my foot on the brake
Aryn started whimpering.
My immediate fear was that she had tried digging that nugget out herself 
and had shoved it all the way in!!
I hollered at her sister to keep her from digging in her nose,
when the sister yelled:
"Mom!!  It's coming OUT.  I can see it!"
Sure enough,
that booger {literally}
was just hanging right out in plain sight.
I hurdled over the seats and children in my way,
and popped that thing right out.
I ran into the office and slapped it on the counter,
and told those nurses we wouldn't be needing the doctor after all.
They seemed as relieved as I was.

So off we went back home to put the rest of our stuff in the van
to get over to that garage sale.
We raised a couple hundred dollars
but hardly put a dent in all the stuff that was there to sell.
I decided that we would try to have just ONE more sale the following weekend....
at my house.
And I have already told my husband to just shoot me in the face
if I ever mention to him what a fun idea it would be to have another garage sale!!

Wednesday, July 6, 2011

3rd and 4th weeks of summer fun!!

The last several weeks have been such a blur of activity that I've lacked significant slots of quiet time
to lay down some words describing our days.
The week following "Art Camp," my children attended not only a morning VBS, but an evening one as well.
Here's what our eventful days looked like:
8 am - Rise and shine, breakfast, get dressed
9 am- 12 pm - VBS for 4 or 5 of the children
                     - Cleaning time for mommy
12:00 pm - Pick up time and head to the local high school for free lunch with all our friends!!
1:00 pm - Home for quiet afternoon of reading, or playing video games or watching a movie
              - Some afternoons we went swimming
5:00 pm - Daddy gets home.  Dinner for him
6:00 pm - 3-5 children get dropped off at another evening VBS where they are served dinner
              - Mommy either goes shopping or for her 1 hour walk
8:30 pm - Pick-up time
9 - 10 pm - Bedtimes

During our 4th week of summer fun we traveled every morning to our home church 30 miles away to participate in VBS there!!
We even borrowed a 15 passenger van from our former church so we could take visitors.
Our high day was 11 visitors on Wednesday morning.
It even worked out that we could make it back to our local high school for lunch too!!

We also threw in a garage sale on the Saturday between those two weeks as part of our "summer camp fundraising."
But that day deserves a blog entry all on it's own!!

Nevertheless it has been really busy.
I have loved nearly every minute of it, but we're all ready for this 5th week of summer to just relax and be home more.
We hit the pool on Monday {the 4th of July} and got terribly sunburned {again which deserves it's own blog post!}.
Because of this, we've all been laying around trying to keep cool.

We've had an unusually warm  HOT summer this year with temperatures in the triple digits nearly every day
for several weeks now.
We don't usually see triple digits until July, MAYBE, August......not as early as June.
And to exacerbate things we've had little to no rain.
For some reason, this year, our A/C hasn't been able to keep up and it's getting up to 82 degrees in our house
every afternoon with the A/C running!!
Obviously we need to address this issue too, but we're afraid we won't be able to afford the fix.

And then there's Ashlyn's blood sugar numbers.
All summer we've done nothing but chase down highs.
Very high highs.
Sometimes accompanied by the dreaded ketones.
We have to get this figured out.
We have to do something different.
I got in touch with one of her diabetes educators at the hospital because our insurance changed at the beginning of June {again....which will get a blog post all it's own.....nightmare!!}.
During the conversation about needing her prescriptions rewritten for the new mail order supply company,
and the fact that I can't keep on top of charting her numbers, I asked about this amazing technology called:
Continuous Glucose Monitoring
Long story short, I got in touch with a representative for the Dexcom 7 CGM System.
We're waiting to hear what or if our new insurance will cover of this.

Next week???

SUMMER CHURCH CAMP!!


Monday, July 4, 2011

Happy 4th of July!!

Seriously?
Are we REALLY in the month of July already?
Celebrating one of my favorite holidays together?










One of our very favorite traditions is attending our home town's 
4th of July Parade.
It's always a ton of fun!!
What are your favorite family traditions for this mid-summer holiday?

We're also swimming,

enjoying a late all-american lunch of:
hamburgers,
corn-on-the-cob,
potato salad,
watermelon,
doritos,
and a special
"Red, White, and Blue" dessert!!

We'll cap off the night with fireworks at our local park,
sitting with other police families at the police station!!

I love our country,
and don't take for granted the immense struggles that took place,
and lives that were given
for the freedoms we enjoy today.
Happy Birthday, America!