Thursday, February 25, 2010

The biopsy

Yesterday afternoon I had my second visit with my endocrinologist. This wasn't really supposed to be treated as a follow-up visit from my initial meeting with him in January, but it kinda ended up that way. He wanted me to come back yesterday so he could do his own ultrasound of my thyroid to get a good look at these nodules I have going on there. He also wanted to biopsy the largest nodule by doing a fine needle aspiration. When he described this procedure to me in January, I left with the impression that this needle was very small, and "fine". I was thinking like the size of my daughter's insulin syringe. Something like this:

But, no, in reality it was more like THIS:

That was precisely MY reaction too.

After he did the ultrasound, he decided he was going to bypass the biopsy because the nodule is so small. He showed me all the pictures and kept pointing out how small it was. But then, he seemed to give it a second thought and felt it for himself again. This time he noticed that it really moves around a lot. That seemed to bother him. I told him I was fine with whatever he decided to do and that I was not going to be disappointed if he didn't do the biopsy, but since I was there anyway it would be fine if he went ahead with it. Then if the results come back as nothing, that's great news. So he went ahead with it.

I have to be honest and say that it certainly wasn't pleasant, but it was pretty quick, and not that terribly painful. I'll spare you the nasty details, but the doctor said it really looked like a "colloid nodule" to him which in laymen's terms means benign. But we'll know for sure when the results come back.

After all that was over, we talked about another blood draw. I explained to him that since I started the levothyroxine in January my intolerance to cold has gotten worse.
MUCH worse.
To the point it is distracting and extremely noticeable.
It's the worst at night time, and tapers off by morning.
I shiver getting ready for bed and have to use extra blankets, much to the chagrin of my already overheated husband. He is very tolerant of all my high maintenance stuff, but the extra blankets make him hotter than he already is, so I hear about that.
When I was sick this last weekend, I had to use a heating pad plus 2 extra blankets on top of the comforter, WITH a FEVER, and I became consumed with how I couldn't get warm.
I told all this to my doctor who immediately said it was time to check my thyroid levels now instead of waiting until the end of March as he decided in January. I also asked if he could check for the antibody levels to see if I have Hashimoto's Disease going on. It is an auto-immune disease where your body basically attacks the thyroid and shuts it down completely, so you have to have a replacement hormone in the form of a pill (levothyroxine). It's treated the same way as simple hypothyroidism, but it's important to know that because you are prone to other auto-immune disorders and the doctors can watch for that. We're also checking to see why my first set of blood work showed that my blood platelets were low. There are auto-immune disorders associated with that too, so it's important to just check all this out.

So, I'm hoping and praying that all of this will be nothing more than a needed increase in the dosage of levothyroxine that I'm currently taking. I'm only on 50 mg. right now, and with the cold issue the doctor is thinking I need to go up on that. If that doesn't help, I'm moving to Hawaii where it's warmer!!!

Wednesday, February 24, 2010

Giving my son some more time.....

I called my son's doctor again this morning (Tuesday) in hopes of actually reaching someone today, and sure enough I reached his nurse on the second ring. I told her how we had been really enjoying how well my son was responding to his Intuniv for the past two weeks, and then I told her what a bad three days he had over the weekend. She thought that maybe there was a correlation between the fact that I had been sick in bed and that Daddy was in charge, and that change affected Grant.
Because this is the first time we've ever tried any medication of any kind to help manage his ADHD, he's always been wired. So to finally see him so calm and cooperative for two weeks, and then to see him behave like he wasn't taking anything, the contrast was stark and disconcerting.
But the consensus is that we are going to stay with the 3 mg. pill and see how he does now that we're back on track with our routine and schooling, and with Mom being back on her feet and part of the family again. Yesterday and today he has been so much better and schooling with him was SO nice. In fact, after we had taken about 30 minutes to sit and watch a math video, work with tiny blocks, and then do a worksheet, I told Grant he could take a 10 minute break or so before we worked on some English.

"No, Mom. I don't want to take a break. I want to get my English done so I can go outside."

WHAT a blessing!!!

Tuesday, February 23, 2010

Update on Ashlyn's diabetes!!!

This afternoon (Monday) was our 4th endocrinologist visit since our second daughter's diagnosis one year ago (Feb. 11, 2009).

We had a TERRIFIC visit and my mind was so put at ease!!!

We're supposed to have these check-up's quarterly but we're having a hard time getting an appointment with this doctor's office because apparently they are booked so solid that we usually can't get a spot that works for our schedule but once every 4 months. Anyway, this visit was with the nurse practictioner, and I talked with her at LENGTH about Ashlyn's thyroid diagnosis, and the troubles we've been having in keeping her blood sugar levels within the range suggested to us (80-150). She pointed out to me that since September she has grown just over and inch and gained just 7 pounds which is much less than I was fearing. She is just in the 50th percentile for her height and 50-75th percentile for her weight. So the increase we have been seeing in her insulin has been because she is growing and her body is getting bigger.

Bigger body=More insulin

Even better news was her A1C Level:


Last July she was at 7.7% and at the end of September she was 7.5%. So I'm very happy that we are least staying within a pretty good range even though we've been seeing lots of high blood sugar readings lately.
Overall, since her medical team seems to be happy with our management of her diabetes and the numbers we've been getting, then I'm going to just keep doing what we've been doing, and put my worries on the back burner of my "stove of worries". Heaven knows I have plenty of other things to keep on top of!!!!

Monday, February 22, 2010

Update on Intuniv......week 5

I've noticed some interesting things about my precious son here recently that I thought I might share with you who are interested in trying Intuniv. We started the 3 mg. pill two weeks ago, and tomorrow will begin our third week on it. At first, he responded really well, and the only "side effects" we noticed were him involuntarily falling asleep around 4 pm for a few days. That seemed to go away after a couple days and he didn't seem to be as sleepy as the days went on. I commented to my husband, and he agreed, that our son was much less edgy, calmer, and hardly had ANY screaming fits. He was much more cooperative in doing his schoolwork, and could sit still and finish his work for longer periods of time. I'm talking, he could sit for nearly an HOUR!! Normally, he's done after 10 minutes!! I would have to say that I do believe it helped him with his focus, though all the packaging suggests that this medication isn't indicated to help with that. It may just be that it helped lessen that urgency to have to move so much, so he could sit still better, hence his focus was on what was in front of him.

Anyway, the other thing we noticed was that if he did get upset by something, his calm down time was cut in half or more. PLUS, by the evening time, he was so cooperative and SWEET. I took the above photo of him in a moment that I have NEVER experienced with him. He has never, ever volunteered to do dishes in his life. But when his sister offered him some kind of kick-back for doing this job for her, he EAGERLY agreed. Never, ever would've happened before the Intuniv. He just wouldn't have the time or the patience for such a task.

BUT......and here it is.....BUT.....this last weekend.....I don't was a trainwreck for him.
Friday morning I woke up and felt like I had been hit by a semi-truck in the night, and I had to call my husband home from work to care for our children because I couldn't stay out of the bed. For two days, I was laying there miserable, and just listening to what was happening with Daddy in charge. Some of it was beautiful, and some of it was just downright ugly. Most of the ugly was my son. It was like he wasn't taking any medication for his ADHD at all!! He spent Friday and Saturday, and a lot of Sunday side-ways..........irritable, screaming mad, crying, angry, upset at the littlest thing. It has been so different that I called our doctor about it this morning to discuss this with the nurse. Of course, I haven't heard anything from them all day, and of course, today has been so different for him. Today he was much more mellow, had a great time beating Daddy at a game of MONOPOLY (a nightmare for kids who can't stay in one place for long....he crushed Daddy by the way!!), and fell asleep again at his normal afternoon time for about 30 minutes. So strange. Anyway, maybe he just needed his mom to be back up and on her feet, maybe it's something weird about the medication. I'll keep you posted if the doctor's office ever decides to call me back!!!

Friday, February 19, 2010

Friday's Fabulous Family Recipe

Last week while the snow was generously falling, I pulled out a couple recipes and the hot chocolate started flowing freely.
I have to be honest.
I ended up using two different recipes.
I just didn't like the way the first batch turned out.
I had forgotten about the silt that forms on the bottom of the pan.
I had forgotten how the powdered milk formed this sort of nasty thick layer that rose to the top and was kind of yucky to sip through.

So I ditched the first recipe and tried another one. We all liked that one much better. I'm going to include the first recipe because I think that foundationally, it is good. I just can't figure out how to solve the "silt on the bottom of the pan" issue. Maybe you can. Let me know if you do.
(I even tried grinding the powdered milk and dry ingredients finer in the blender before adding the water.......still no good.)

Hot Chocolate #1
1 cup nonfat dry milk powder
5 tablespoons sugar
3 tablespoons baking cocoa
1/8 to 1/4 teaspoon ground cinnamon
Dash of salt
3 cups boiling water

In a saucepan, combine the milk powder, sugar, cocoa, cinnamon, and salt.

Add boiling water, stir until milk powder is dissolved.
5 servings
(You can see in the above picture that I tried putting everything in the blender first, to make it finer, but I still had problems with it.)

Hot Chocolate #2
(My children's favorite)

2 Tablespoons sugar
2 Tablespoons unsweetened cocoa powder
3 cups skim milk
1/2 teaspoon vanilla

In a medium saucepan stir together sugar and cocoa powder. Gradually stir in milk till smooth. Heat over medium heat till warm.
Remove from heat; stir in vanilla.
Makes 4 (6 oz.) servings

And then with all the cold weather, my children just DEVOURED the new instant oatmeal recipe that I just found for breakfast. With the host of health issues my children have, I'm on the lookout for healthy new ways to feed them. I found this recipe on the Homemaking Homesteader's blog, and it's WONDERFUL!!! Click here to see the recipe and all her pictures because it's quite well done and easy to follow. It's delicious, healthy, and my children LOVE it!!

Thursday, February 18, 2010


Growing up in Northwest Ohio, snow was a regular, frequent, and eventually monotonous part of every winter. I enjoyed lots of winter activities from sledding to fort building to ice skating to "snow days" from school. But it wasn't until I was living in New Hampshire as a newly graduated college student that I tried this recipe. I found it in a great cookbook that I will share at a later time.
Since we NEVER have enough snow to make this, I thought that last week's snow event would be a once-in-a-lifetime opportunity for me to introduce this to my children. They were very intrigued to say the least.
I have to be honest though, and confess that I was not completely enamored by the results this time around. I truly believe that the TYPE of snow we had last week was too heavy and wet and grainy for this recipe to turn out as good as I remember it. Maybe it's just New Hampshire snow, but I think it would have worked better if it had been the finer, more powdery kind of snow that doesn't make great snowmen. Anyway, we had such fun finding clean snow and then tasting something new!!! Yummy!!

Snow Ice Cream
Serves 8 children

Stir together lightly:

2 1/2 quarts clean snow
1/2 cup milk or cream
1 teaspoon vanilla
1 cup sugar

Eat right away!
Does not freeze and keep well.

I used a 5 quart ice cream pail to gather our snow.

Mix everything together until well blended.

Again, this wasn't the kind of "ice cream" as you think of in the soft serve machines.
Ours turned out more watery and slushy.
I tried several batches with less milk and more snow and vice versa, and came up with
the same result every time.
It was just the texture of the Texas snow!!
But it sure tasted sweet and delicious!!!

Wednesday, February 17, 2010

Whiter than snow

This last Thursday morning, my oldest daughter awoke before the sun was up. When she peeked out her window and saw all the snow, she immediately woke her 5-year old sister who was sharing the top bunk with her, so she too could see the excitement happening outside. Of course, they had to wake me up at that time too to let me know about this, so after I told them their daddy had already told me at 4:30 am when he was leaving for work, I sent them back to bed. I could hear them whispering on and off for a little while, then silence again.
Later that morning, once we were all up and eating some breakfast, my oldest daughter casually told me about her conversation with her little sister in the wee hours of the morning with the snow softly falling outside.

She said, "Mom, I told her that her sins could be made whiter than the snow. Abby got saved this morning."

Well, that perked my ears up right away. I asked her to tell me again about their conversation, and then knew I needed to follow up with her right away.
See, for several months now we've been talking with Abby about her need for salvation. She knew that she was a sinner as the Scripture tells us we all are in Romans 3:23. She knew that she could not have a home in Heaven because of the sin in her heart, and because that sin separates her from God as we read in Romans 3:23 and John 3:3, 6, 15, 16,17 and 18. She knew that Jesus Christ died in her place and paid the price for her sin by His shed blood as the Bible tells us in Romans 6:23, and I Corinthians 15:3 and4. She understood that she needed to ask Jesus to forgive her of her sins and to come into her heart as we explained to her from Romans 10:9, 10 and 13. But we just weren't convinced that she was completely understanding the entire concept together.
But that morning we were given a magical picture in nature to illustrate what God does with our sin when we ask for forgiveness and cleansing:

"Come now, and let us reason together, saith the Lord:
though your sins be as scarlet,
they shall be as white as snow....."
Isaiah 1:18

When I read that to her from the Bible and she saw what was blanketing our yard and trees, it became perfectly clear to her. So, in her mommy's bed, tucked under the covers, we prayed and she asked Jesus to forgive her of her sins and to come into her heart. It was a very precious moment, and made that amazing snowfall even more extraordinary to our family!!

"Purge me with hyssop, and I shall be clean:
wash me, and I shall be whiter than snow."
Psalm 51:7

Whiter Than Snow
Words: James Nicholson, 1872. Music: William Fischer.

Lord Jesus, I long to be perfectly whole;
I want Thee forever to live in my soul.
Break down every idol, cast out every foe;
Now wash me, and I shall be whiter than snow.
Whiter than snow, yes, whiter than snow.
Now wash me, and I shall be whiter than snow.
Lord Jesus, let nothing unholy remain,
Apply Thine own blood and extract ev’ry stain;
To get this blest cleansing, I all things forego—
Now wash me, and I shall be whiter than snow.

Tuesday, February 16, 2010


This past Thursday and Friday we received 12.5 inches of snow in less than a 24-hour period.
It was magical.
For north Texas, it was crazy.

Many of my neighbors have lived here their entire lives, and had never seen that much snow at one time. They literally didn't have the experience to know how to deal with all of it.
I took several walks around the neighborhood during that time, and it was really interesting to watch how everyone's attitude evolved during that time.
At first, it was wonder and excitement. It was unusual to see snow AT ALL, much less watch it accumulate on the ground. The children were in and out ALL day making snowmen and having snow ball fights. The hot chocolate was flowing freely!!

This was the tree in our front yard on Thursday morning.

This is our driveway and van on Thursday morning.

This is our neighbor's tree on Thursday morning.

Ashlyn's snowman on Thursday.

By evening time on Thursday night, the excitement turned to concern and even mild fear. Since that morning, we had received probably another 7 inches of snow, with more to come through the night. There was talk about roofs collapsing. The power on our entire street started flashing on and off. As folks were arriving home from work, they were sliding around and getting stuck trying to get into their driveways. Most were trying to shovel with measly GARDEN shovels.
By bedtime, we had no power. We bundled up the children in clothes and let them sleep together on the sofa bed to keep warm.

On Friday morning, the power was back on, miraculously. Nobody could move though. There has never been snow like this before, so the cities don't invest in snow plows or salt for the roads. We are literally snowed in!!

The same tree in our front yard on Friday morning.
Did you notice Ashlyn's snowman there at the bottom of the picture on the left?

Our van in the driveway on Friday morning.

This is our neighbor's tree partially laying in our driveway on Friday morning.

I heard something unusual outside on Friday morning, and when I looked out the window I saw someone trying to help get the roads cleared off. He went up and down one time and I never saw him again. See his dog following behind him?

Trees were down all over the place, and this was at the end of our street.
This tree had fallen from someone's yard over the street sign into the street.

Monday, February 15, 2010

Valentine Fun!!

This past week really was quite magical because we had record breaking snow fall in our area.
Folks who have lived in Texas all their lives told me they had never seen that much snow.....especially in a 24-hour period.
Pictures of that are coming this week!!
But because we were essentially "snowed in", I couldn't get out to the store and pick up
a lot of things for Valentine's Day.
But I was able to pull together some things I had in storage from last year's clearance sales, to have a really fun impromptu Valentine's Party for my family.
My husband took the children out for a few minutes and drove them around to see
some of the snow damage while I put all the decorations out!!
Take a peek.....

Friday, February 12, 2010

Update on Intuniv......week 3

Don't get the impression that my poor son is laying around all day sleeping now that he is taking Intuniv.
But I do notice when he falls asleep involuntarily during the bright daylight hours. This was only the 2nd time in his entire lifetime that he has fallen asleep "accidently."
I snapped a picture of him yesterday afternoon after a fun morning of playing outside in our record breaking snow event here in Texas.
He was like this for maybe a half hour or 45 minutes, and then he was back up and outside for more fun. He even went right to sleep at his normal bedtime too!!

I can tell a difference in how I'm feeling also now that he is getting more regulated on this medication.
He is much calmer and cooperative, and he isn't spending his downtime irritating his siblings.
He seems to be able to just sit down quietly and watch some TV with us, or play quietly with his own little toys. I'm feeling much more relaxed and not as high strung because of his constant
flitting around and conflicts. Whew!!!
Up to this point (and we're up to 3 mg. and our 3rd week of taking it), I have seen no adverse reactions or side effects. The ugly mask of anger and frustration seems to be coming off
and we're seeing a better engaged, happier, less irritating child.

Thursday, February 11, 2010

1 year anniversary

One year ago today.

We had no idea what was to come.
We had no idea we would be sent immediately to the emergency room.
We had no idea we would spend the next three days in Children's Hospital.
We had no idea how this would change our lives and hers......forever.
We had no idea how overwhelming her care would now be.
We had no idea how this would change her........and us.

Type 1 Diabetes......

One year ago today.

This picture was taken just about 2 weeks before we received Ashlyn's diagnoses.
(January 2009)

This is Ashlyn one year from the above picture!
(January 2010)

Tuesday, February 9, 2010

Update on INTUNIV.....Week 3

After speaking with our doctor's nurse this last Friday or Saturday, I was watching to see if the 2 mg. of Intuniv really was making much of a difference. Saturday evening Grant did something that I've NEVER seen him do in his entire 7 1/2 years of life.

He fell ASLEEP on the couch at 5:30 pm!!

To some of you, this may be coincidental, or insignificant, but he has NEVER done that.....even if he was sick. He goes to sleep at night, pops awake in the morning, and is go, go, go until bedtime.....always. He has never, ever complained that he was tired or asked to go to sleep.

His older sister started messing with him of course, and it irritated him. So he went into his own bed voluntarily, and went back to sleep. When I tried waking him for dinner, he said he wasn't hungry, and that he was tired.

I'm going to just go ahead and say that was due to the Intuniv.
All the info. we've heard so far says that "drowsiness" is one of the side effects.
For me, that is a blessing, not a side effect.

He was back up within the hour, though he was very calm and cooperative. Normal bedtime came and went without a hitch!!
He had a really great day on Sunday too, even with the friend over of one of his sisters. Usually that sets him off and highly excites him, and he is running around more and is more irritating than normal. But he was very under control that day.

I also noticed that Grant was totally getting the humor in a movie we put on for the children Monday night. We watched Toy Story, which is not new to us, but we haven't seen it in a while. All the children were mesmerized. I don't remember Grant ever laughing and truly enjoying a film like he was this one. I was amazed to see him sit there and just flat out laugh at some of the funny things the characters did. His 3-year old brother was sitting there belly-laughing right along with him, but Grant usually either doesn't find things funny or doesn't get why it was funny. He wasn't being over-the-top or silly, just appropriately having fun. It was monumental to see him enjoying this as much as he did!!

So, this morning, we started the 3 mg. tablet. We are to keep in touch with the nurse this week to update her on how he is doing, but we did get a 30 day supply. I'm very hopeful that this new dosage will be even more of a benefit to him. School this morning was a PLEASURE!!! No anger or raging through the house!!

Just for informational purposes I thought I would tell you about our cost
for this medication so far.
The first two weeks were "samples" from the doctor, so that didn't cost us anything. This bump up to the 3 mg. came in a month's supply and would've cost us $174.79 for 30 tablets at our Kroger Pharmacy. Because this is such a new medication on the market, it doesn't fall under our "preferred prescriptions" with our insurance, so we will have the highest co-pay on this that will run us $40/month. This first prescription though didn't cost us anything because the Intuniv Starter Pak included a card for $50 towards the purchase of our first prescription. I believe that once we complete the final survey that is a part of activating the aforementioned card, we will again receive a coupon or something toward the next month's prescription.
Still have lots of work to do, but have been pleased with Grant's progress so far!!

Saturday, February 6, 2010

Update on INTUNIV....Day 11

So we still aren't seeing huge benefits yet from this new medication called Intuniv. We're about 3 days from running out, so I called our doctor's nurse, per her instructions when we were there a couple weeks ago, and gave her the update. She asked me if he was getting worse, and I could honestly say that he is NOT worse. He still has his emotional melt-downs and disrespectful responses when corrected and impulsive reactions to his siblings irritations, but it has been softened somewhat. When I told the nurse all that, her response was, "Well, then he needs a higher dosage, I'm sure." We are to finish out the remaining 2 mg. tablets that we have and if we notice a dramatic change for the better, we are to call her back on Monday because the doctor would probably want to keep him at the 2 mg. If we don't note much of a change, we are to move on to the 3 mg. pills. She did encourage me to continue to be patient as this medication takes a while to get established in his system, and they say the wait is worth it. (I hope so!!!)
She did ask me to call my pharmacy tomorrow though and make sure they have Intuniv in stock, and if not to ask them to ORDER IT!! Apparently that has been a problem in some places. Doctors prescribe it, but the pharmacy doesn't have it?? How crazy is that?
Anyway, that is the update from the frontlines!! I certainly had a lovely day yesterday, and hope you have as equally as lovely a weekend.

P.S. This Bible verse has been trickling through my mind here lately. Most likely because of the milestone birthday I celebrated this week!!!

"So teach us to number our days,
that we may apply our hearts unto wisdom."
Psalm 90:12

I reminded my husband that in just 5 years we will be looking at our oldest daughter about to turn 18 years old. 18!!! That's not very long. I don't have much time left with her to model Christ's compassion and grace and love, and to teach her His values for young women and His design for her as a lady!!! I better go get busy!!!

Thursday, February 4, 2010

Happy Birthday, Mom!!

Here is a picture of my lovely, wildly creative, recklessly giving,
high energy 12-year old delight of a daughter, Alexis.
If she could've had any amount of money, she would've gone shopping and bought me
some lavish thoughtful gift. She's just that way. It's God-given, that nature, that spirit.
So because she couldn't do THAT, she thought of something else she could do.
She wanted to design a special cake for me.

This is what she came up with....

....and I love it!!!!

Forty is Fabulous!!!

Wow. Forty!! Seriously?? But I don't feel forty. I FEEL more like......say......26. But I guess because I've got to do some serious work to cover up those gray hairs now, and because I have to start my morning with a pill, that I should accept the fact that I am really....40!!!

I've been posting some funny, yet thought-provoking, quotes about turning 40 on my Facebook status throughout this week.
Indulge me and let me share them with you here:


At the age of twenty, we don't care what the world thinks of us; at thirty, we worry about what it is thinking of us; at forty, we discover that it wasn't thinking of us at all.

Arthur Schopenhauer

The first forty years of life give us the text: the next thirty supply the commentary.

To be 70 years young is sometimes far more cheerful and hopeful than to be 40 years old.

Oliver Wendell Holmes, Jr.

At twenty years of age, the will reigns; at thirty, the wit; and at forty, the judgement.
Benjamin Franklin

Age is strictly a case of mind over matter. If you don't mind, it doesn't matter.
Jack Benny

A diplomat is a man who always remembers a woman's birthday but never remembers her age.
Robert Frost

Growing old is mandatory; growing up is optional. ~Chili Davis

And as a matter of film trivia:

Do you know who shares a birthday with me today?

This lovely lady was born on the EXACT day as I, so she is also having her 40th birthday today.

Do you know?

What I love is that she starred in one of my favorite films of all time...

It's a chick flick....

(I know she has been in other films also, some of which I'm sure have not been wholesome or ones I would recommend, so please no comments on that....just indulge me again since it's my birthday!!!)

Wild Hearts Can't Be Broken????

Yes, the lovely Gabrielle Anwar...

I wonder how she is spending her day?

My plan is to go get my hair done, do a little shopping, and just be quiet and by myself. A little regrouping time. I may even drop in on a Starbucks for a Mocha Frappachino. I NEVER do that, so that might be my big adventure of the day!!!

I have such a lovely husband who has taken the day off to take care of things so I can enjoy the day away from things for awhile without any worries. Gotta love a man like that!!!

He is even going out and doing the routine grocery shopping for me the frigid cold and rain!!! Love him!!!

Happy Birthday to all you who share a February birthday with me!!! I don't run into a lot of you, but you definitely know who you are!! So put on your amethysts and enjoy yourself!!!

Wednesday, February 3, 2010

Update on INTUNIV....Day 9

Today was the second day Grant took the 2 mg. dose of Intuniv as we slowly work toward finding the right dose for him. Let me just describe our day in several words:


Train wreck




It was basically like he has been taking nothing. Needless to say, I was very discouraged and feeling a bit hopeless.

Monday, February 1, 2010


The robin on my lawn,
He was the first to tell
How, in the frozen dawn,
This miracle befell,
Waking the meadows white
With hoar, the iron road
A-gleam with splintered light,
And ice where water flowed:
Till, when the low sun drank
Those milky mists that cloak
Hanger and hollied bank,
The winter world awoke
To hear the feeble bleat
Of lambs on downland farms:
A blackbird whistled sweet;
Old beeches moved their arms
Into a mellow haze
Aerial, newly-born:
And I, alone, agaze,
Stood waiting for the thorn
To break in blossom white
Or burst in a green flame......
So, in a single night,
Fair February came,
Bidding my lips to sing
Or whisper their surprise,
With all the joy of spring
And morning in her eyes.

Francis Brett Young

Update on INTUNIV....Day 7

I do have to say, that even though we are still only on the lowest dosage of INTUNIV (1 mg.), our weekend was MUCH less emotional and angry!! I did not get any comments yesterday at church on his behavior (either good or bad), but I did talk with some friends and in telling them about what we're trying with Grant, they did notice that he was sitting quietly by me and playing with something in his hands rather than scooting around in the chair or just running through the room.

He was also easier to get engaged in something constructive rather than being frustrated about Sunday afternoon boredom. He was less edgy and explosive. Overall, it was a pleasant weekend.

I have also noticed that, as a family, we are going to have to be more aware of our responses to Grant now, and be willing to adjust our attitudes as he is adjusting also. For so many years now, he has habitually responded angrily or argumentative when being corrected or even teased by his siblings. Now that he is becoming more calm, I want to focus on training him how to recognize when he is becoming frustrated or upset and how to constructively handle those situations rather than just immediately popping off. In correlation to that, his siblings and his parents are going to have to learn how to be less defensive and not as quick to respond harshly to him.

That's where the grace comes in.

Tomorrow morning we start on the 2 mg. dose for the next 7 days. Already looking forward to some great moments with my son!!