Tuesday, September 29, 2009
Monday, September 28, 2009
in February. I was really sweating it this time because we've had such a time trying to keep
her blood sugar within normal range since we switched over to using
"insulin-to-carb ratios". For the last two months or so, her numbers have been
consistently high, so I was afraid that her A1C would be high this time.
I was nervous that maybe the doctor would frown on us and wonder if we
had actually learned anything in the class we took in June, or if
he would scold us for not making enough adjustments to her insulin amounts.
I don't know why I was thinking these things, but I guess that's just part
of having a child with a disease like this where you are basically keeping her alive
by the quality of the care you give her.
Her A1C level in March: 10.2
Her A1C level in July: 7.7
Her A1C level today: 7.5
I just couldn't believe it! I was "high-fivin" the nurse, and laughing like I'd won the lottery.
The doctor reassured me that she had had enough good numbers mixed into all the
high ones to help her to get such a great reading today!!!
Needless to say, I was so relieved!!
The big surprise though was her weight!
Her weight in July: 54 lbs.
Her weight today: 72 lbs.
Ummm...yeah.....that's a whopping 18 pounds in 2.5 months!! But the doctor said that she is still just below the 50th percentile for her age, so I'm so glad we're getting her weight back to healthy levels!!! In July she had been so sick for one week and then went to summer church camp the following week, which is why her weight was low at the last visit.
Since her blood glucose readings have been on the high side across the board for over a week
now, the doctor did recommend several changes in her insulin levels. We're going up to
9 units of Lantus,
changing her correction scale from 1 unit at 250 to 1 unit at 200
with a unit for every 50 over 200,
and jumping from a dinner ratio of 1:16 to 1:13.
This seems like a lot of change and much more insulin than we've ever done,
but the doctor said she's out of her "honeymoon" phase now.
Kinda sad about that.
To me, it means that that is it......it's final......her pancreas is completely gone now.
1 a (1) : an act or process of withdrawing especially from what is difficult, dangerous, or disagreeable (2) : the process of receding from a position or state attained
2 : a place of privacy or safety : refuge
3 : a period of group withdrawal for prayer, meditation, study, or instruction under a director
"And he (Jesus) said unto them (his disciples),
'Come ye yourselves apart into a desert place and rest a while:'
for there were many coming and going,
and they had no leisure so much as to eat."
As a busy mommy, I often have days like the disciples had that day. I often don't have a chance to sit down and eat before my children have finished and are up and at it again. Some days I realize in the middle of the afternoon or around dinner time that I haven't even had a minute to get to the bathroom. Motherhood is incredibly demanding and exhausting. So this past summer, when my husband came home from spending the week with our two oldest girls at summer camp, and told me he wanted me to go to our church's Ladies Retreat in September, you can imagine how delighted I was!! It had been 4 babies ago that I was able to leave all the children and get away for a couple days. My husband took the week off of work so I wouldn't have to worry about arranging for child care for our 6 children. He should get the "Father-of-the-year Award!" He does in my house anyway!!!
I think it's important that we figure out a way to get our rest.....to retreat from the demands around us and just rest in the quiet peace that only our Lord can give us.
We were challenged by the speaker to make our quiet time with the Lord our PRIORITY for the day. With small children that is SUCH a challenge. It's so difficult sometimes to figure out just how early is early ENOUGH to get up before little ones. If I try to find that quiet time at any other time of my day, it somehow alludes me. So morning is the best time for me.
"My voice shalt thou hear in the morning, O Lord:
in the morning will I direct my prayer unto thee,
and will look up."
I'm not always successful at being consistent with this endeavor, but I'm trying to take little steps at a time to make this discipline a reality every day!! It's where I can find strength and peacefulness in the chaos of my everyday. The Lord reminds me of His presence with me as I go through the day. He gives me that internal compass, that purpose for what I'm doing at home with all my children.
I thought you might enjoy a peek into the loveliness that was my retreat this past weekend.
Tuesday, September 22, 2009
Monday, September 21, 2009
Saturday, September 19, 2009
So I moved it all to the dining room table. Well, then it was taking so long for me to get to the folding and to finish all the folding, that the table was becoming unusable for mealtime and even our schooling.
So with no other options left, but laundry still piling up, I had to figure something out that would take me very little time to fold 4-5 loads of laundry at a time in just a few minutes. I had asked my mom the last time she visited us if she could help me come up with a solution, and I ended up expanding on her idea. Here's what I came up with:
First, I wash and dry everything before I even start. I end up with a mountain of laundry, but then I only have to do this once!! As I wash and dry it, I put it in laundry baskets and stuff in out of the way (usually in our bedroom) until I'm ready to sort.
Next, I purchased a different color "basket" for each of my children who can handle putting away their own laundry. So Alexis, Ashlyn, Grant, and Abby each have their own basket, while I have a basket for the two youngest because both of their clothes go in the same dresser. I also have a basket for my, and my husband's, things.
Then, I gather up all the laundry to be folded, all the baskets for each member of the family, and put it all on the table.
I simply toss the different items of clothing into each appropriate person's basket without folding them. I leave the folding and hanging up of the clothes to the children. I do end up folding the two youngest's clothes, as well as mine and my husband's, and putting all of that away. But in our family, the only things that are folded and put into dressers are underwear, socks, and jammies. We hang up everything else.
You can see the 5 baskets of childrens clothing, along with our hang-ups over the chair.
You'll also notice a shabby 'ol cardboard box there at the end.....that's my single sock box.
That's where all the lonely socks that come out of the dryer single go until we go through it and match them back up.
I usually have one of the girls fold the loads of towels and sheets and put those away too. This new system has saved me HOURS of time, plus it teaches the children how to properly store their clothing and where things belong.
I have also found that it works much better for me to do all this sorting after all the children are in bed, so first thing in the morning, as they are doing their morning chores, they can just grab their basket and clear their clothes off. Then the basket goes into their closet to be used as a hamper until laundry day again. They just bring their basket to me full of clothes to be washed and we start over!!!
How have you learned to tame your "laundry monster?"
Friday, September 18, 2009
But I do have a question about it, and if any of my new or "faithful" readers would know the answer, I would love to hear from you. What I don't understand is that we have been told over and over by nurses, doctors, AND pharmacists that the insulin must be refrigerated. This is supposed to preserve it and keep it from loosing it effectiveness. But now the directions for the pen tell us absolutely NOT to refrigerate the pen. But you can't take the insulin out of it once you have it primed and ready to go. How does that work?? Does the insulin go bad sooner? I haven't found anybody that can give me a consistent answer for this. So we'll see.
Also, since we've been using the ratios consistently, I've found that Ashlyn's blood sugar levels have just sky-rocketed. We've had to make several adjustments up in her insulin amounts with both the Humalog (at all meals) as well as her bedtime Lantus. I'm not sure we're doing it right. I was under the impression that we no longer have a set amount of carbs for meals or snacks and that we now calculate how much insulin she needs based on how much she wants to eat. But I seem to remember reading somewhere that you can't make to many jumps in the number of carbs all at once, or it messes up your system and makes your blood sugar levels all out-of-whack. I guess my question is this: So does she truly have the freedom to eat whatever she wants, or can she just fudge once in a while and we add extra to cover those extra carbs? Any thoughts???
Wednesday, September 16, 2009
Last year they were just about 9 months old. This year they were both nearly 20 months old. I hope we can get a picture of the two of them every year now so we can watch how they grow up!!!
Tuesday, September 15, 2009
So here are some of the things we did to keep children from running around and making a general nuisance of themselves:
Making sun catchers with paint.
Making sand bottles.
Playing a rousing game or two of Yahtzee (a family favorite).
Playing in the outdoors anyway!!
And of course, there WAS a little of this kind of thing....
....and this kind of thing (I don't know if you can tell in this picture that he is dripping wet from falling down flat on his belly in a puddle!)
Monday, September 14, 2009
.....or getting to go into THIS.......
......we did things like this....
....and even a little of this: